Chapter 144 Liu Hong's fifteen reports

Sent: Thursday, October 28, 2004 12:20 AM Subject: Liu Hong's 15th Report everyone, It has been one and a half months since the last report, and we are still in trouble. When I needed platelet transfusion, I began to consult relevant knowledge, and learned that general hospitals usually set the standard for platelet transfusion below 20,000 platelets.However, the doctors in our hospital have a very different level of understanding of blood transfusion standards. Although I also conveyed the information I learned to the doctor, I failed to follow through. My own understanding of low platelets has also gone through a process. In many moments, it was difficult to control the situation, which led to excessive blood transfusion in the early period, and made Ziyou develop antibodies to platelet transfusion in a relatively short period of time, which I regret very much.Since Ziyou's illness, in order to avoid mistakes in treatment, every step forward has been based on obtaining as much information as possible and acting after detailed demonstrations. However, the response to low platelets after chemotherapy made me feel very frustrated.After that, we had to transfuse specially matched blood when necessary.For some reason, Ziyou's appetite became worse and worse. At the end of September and the beginning of October, he could hardly eat, vomited, and his body was extremely weak.Entering October, the platelets dropped to a lower level than the previous two months. On October 9th, I got the result of MDS-RAS from Ziyou's bone marrow puncture on September 30th. I went to the Department of Hematology, Children's Hospital, and asked an expert to see him. He was told that his platelets could no longer increase, and he had pre-leukemia.This hit me hard. On October 12, the Cancer Hospital invited an out-of-hospital consultation, and then we were transferred to the Hematology Department of Xiyuan Hospital.A detailed blood test was performed here and is inconclusive.Now Ziyou's platelets are only about 10,000 (normal value is 100,000-350,000), and the infusion of immunoglobulin and taking hormones for a month have not seen any effect.How I hope there are no extra problems, just because of the chemotherapy, the hematopoietic function of the bone marrow is severely damaged, and the recovery is slow.At present, Ziyou's appetite has recovered, and his mental and physical strength are good.He is calm.Read books every day, for example, this week he read "The Da Vinci Code", ", "Animal Farm", etc., and a lot of magazines.I write every day, finished writing a drama, and completed five episodes of the sitcom "I Love My Class". I am writing essays "Writing Outside the School Gate", novels and essays.There are too many ideas, let go, here and there, just for fun.Pay attention to the movie world every day, full of fantasies about the future.Although we have moments of anxiety, fear, and overwhelmedness, and have not yet overcome the predicament of low platelets, we still enjoy the little happiness in life.Think about it, many parents often ignore the opportunity to grow up with their children because of some trivial things, what a pity.And because of the illness, I can watch over my son day and night, share the whimsy in his mind, and share the pain of his body. How happy I am.Friends often say that I work hard, but in fact, being able to do it for my son is a great happiness.In the department where we live, a high school girl went to the doctor the day before yesterday and asked to have her heart replaced by her father, who passed away last night.I understand what this kid is thinking.This is a loved one!A friend of Ziyou told his parents that Ziyou is happier than me.Don't think he only has a mother, don't think he is sick... When that mother told me these words, I was very touched.Ziyou and I have now become the object of complaints from our classmates or their parents. Seeing that due to the pressure of study, there are various conflicts between parents and children, family estrangement, and most of the children are unhappy. We deeply regret it.Especially in our current situation, we understand what is the most important thing, one is health, and the other is being a human being.Friends have always cared and helped us in various ways, and new friends have come into our lives constantly.The love is deep and the meaning is heavy, the clouds hang down and the sea stands, how can I say thank you.

It's cold, keep warm and prevent colds. Liu Hong